No Health without Mental Health! Let’s Co-create a Mental Health and Wellbeing Toolkit.

HYBRID

The rare disease community has highlighted the lack of holistic support from medical services, where their physical health needs are met but not their psychological and emotional needs. The United Nations recognises this and calls for effective programmes, promoting mental health and psychosocial support, to be implemented through enhanced psychologically informed medical care.

This session will start a co-creation process to develop a new Mentally Healthy Toolkit for the rare disease community, by exploring the existing approaches and tools, that have worked in the rare disease community, to drawn on these tools form the basis for a new Toolkit. As well as providing concrete policy solutions that can support the implementation of the UN commitment into national healthcare systems.

The Mental Health Session, that takes place as part of EURORDIS’ European Conference for Rare Diseases, will draw on and explore existing psychosocial approaches and tools to test their applicability, transferability and scalability for other rare conditions and communities.

At the close of this session, participants are expected to be able to:

– Build the awareness and understanding of the impact of rare diseases on mental health and on the risk and protection factors that influence our mental health and wellbeing.

– Leverage the insights gained from existing psychosocial approaches and tools to alleviate mental health challenges associated with rare conditions for both the individual and the family, to include in EURORDIS’ Mentally Healthy Community Toolkit.

– Identify recommendations to policy makers and the new European Parliament to develop psychologically informed medical care, that support the UN’s call for Mental States to establish psychosocial support for PLWRD and their families.

Registration can be made via the following link: